Patient Stories

Cancer is not fair, but accessing cancer treatments should be.

When there are inequities in our health care system, it’s the patients and their families who suffer the consequences. If you or someone in your family have faced challenges getting cancer treatment, including out-of-pocket costs or delays in filling prescriptions, consider sharing your story. By adding your voice to the campaign, we are stronger in our mission to help ensure all patients receive high-quality cancer treatment at home and in hospital, regardless of age, cancer type or postal code.

Please share your story in the form below and we may add it to this page. Here are some of the responses we have received:

Tricia - Ontario

I was diagnosed in November 2016 (de novo) with Metastatic Breast Cancer. The healthcare system has been efficient at providing me with expedient support and treatment. In my 6-months of intravenous chemotherapy, I learned about the possibility of one-day needing a take-home-pill, as an ongoing line of defence against cancer. More/Less

Tarja - Ontario

I've now just completed 12 months of chemotherapy, to the tune of $4,000.00 a month. More/Less

Kevin - Ontario

I pay $6,400 a month. My meds come in pill form, if it were an IV it would be covered by our government plan.

Becky - Ontario

I am a 36 year old single mom (one child) living in Ontario. More/Less

Cheryl - Nova Scotia

My mother was diagnosed with stage 4 kidney cancer December 2015. She's is currently on her first line treatment which is given orally. All Canadians should have the same equal access to treatment.

Marianne - Cambridge, Ontario

My husband, Paul, has advanced kidney cancer. He's taking Votrient, an at home-chemo drug. More/Less

Sharon - Niagara Falls, Ontario

I myself have had great problems with getting my leukemia medications had a lengthy and gruelling wait. More/Less

Tammy - Manitoulin Island, Ontario

We are very lucky that Shawn's clincal trial is covering the cost of the cabozantinib that he is taking now. The next drug in the line up of treatments for renal cell carcinoma is Everolimus. More/Less

Karen - Ontario

My son is a three time malignant brain tumour survivor. We have no benefits (or income at the moment), and one of the drugs my son takes is not covered by Trillium Drug Plan. More/Less

Tricia - Hammonds Plains, Nova Scotia

I was appalled to learn that oral treatments are not covered provincially or by some private insurance companies. More/Less

Cate - Ottawa, Ontario

I have Neuroendocrine Cancer in my pancreas and bones. These are metastases from a bronchial tumour removed in 2010 along with my right lower and middle lobes. More/Less

Michelle - Canmore, Alberta

To this date, I have never had to fill out any forms to get my meds. They are fully covered for me. More/Less

Carol - Erin, Ontario

In September I was started on Nexavar which was about $6400 per month. My insurance covered half and the hospital found funding for the other 50%. More/Less

Cathy - Edmonton, Alberta

I was diagnosed with stage 3 Follicular thyroid cancer with metastases to several bones, 2 lymph nodes in the neck and metastases to my liver in 2012. More/Less

Tom - Ontario

On November 23, 2014 I was diagnosed with Non-Hodgkin Lymphoma, primary Central Nervous System. More/Less

Tiffany - Orillia, Ontario

I had to spend most of my tax free investments to get medication before my drug plan kicked in. More/Less

Jan - Ontario

Thank you for this site. Unless you have been there, it is a dirty little secret. More/Less

Brendan - Ottawa, Ontario

I was diagnosed with prostate cancer in 2011. When my prostate was removed the doctor found the cancer has spread to my lymph nodes so my surgery was followed up with 8 weeks of radiation & hormone therapy injections every four months for a year and a half. More/Less

Ed - Windsor, Ontario

My late wife went through chemo treatments and had to have a prescription for a drug in between treatments which cost $2,500 for 10 injections. She had to do that 6 times with a max on her drug plan of $2,500 per year. More/Less

Sue and Dave - Ontario

Dave and I are very interested in the cost of cancer. In April of 2013 Dave was diagnosed with stage four prostate cancer. More/Less

Ann - Ontario

I had chordoma. Proton beam radiation treatments for chordoma cannot be repeated in the same area. More/Less

Peter - Toronto, Ontario

Diagnosed with Chronic Lymphocytic Leukemia CLL at age 59 and treated six months later with three rounds of FCR at Princess Margaret Hospital. More/Less

Lori - Nova Scotia

My name is Lori, and I live in Nova Scotia. In July 2013 I found a lump in my right armpit. More/Less

Sue - Ontario

My name is Sue and I was diagnosed with Pituitary T-Cell Lymphoma which has since become Peripheral T-Cell Lymphoma. More/Less

Wendy L. - Winnipeg, Manitoba

I am on monthly chemotherapy to address cancer that was diagnosed last June. More/Less

Marc - Ontario

My name is Marc. I am 52 years old. I live in Ontario. I survived Malignant Melanoma, stage2 in 1993. More/Less

Krista - Calgary, Alberta

At 29 I was diagnosed with Chronic Myeloid Leukemia (CML). More/Less

Alexandra

I am a young person living with advanced (stage iv) inflammatory breast cancer. I am in my 30s and on long-term disability due to my illness and treatments. More/Less

Jillian

My father has stage IV RCR. We are fortunate enough that my father's private insurance through work covers 100% of his medications. More/Less

Jane Harvey - Alberta (formerly Ontario)

I was diagnosed with CML in March of 2010, and started on Gleevec the following month. I received health care in Ontario until August of 2013. More/Less

Dana

My current oral drug (Afinitor) costs $6000/month. My deductible with Trillium is $6600/year because I continue to work and bring in an income. More/Less

Patrick McConnell - Burlington, Ontario

I was diagnosed with SLL/CLL in 2002 which is an indolent form of blood cancer. More/Less


Connie - Waterloo, Ontario

In January 2013 my mom was diagnosed with an oligodendroglioma brain tumour. More/Less


Anne Marie Cerato - Ontario

I am currently on a targeted medication to treat my stage 4 ALK+ lung cancer that is and has been saving my life for two+ years. More/Less

Robert - Toronto, Ontario

I was diagnosed with chronic lymphocytic leukemia in 2005 at the age of 35. More/Less


Jeff - Ontario

Hi my name is Jeff. I was diagnosed with prostate cancer in 2007 at the age of 43. More/Less

Jennifer - Scarborough, Ontario

In April 2011, I was diagnosed with Oliodendroglioma. More/Less

Leena - Northern Ontario

My name is Leena and I live in Northern Ontario, I was diagnosed with terminal Glioblastoma Brain Cancer Sept 2012. More/Less

Lynsey - Guelph, Ontario

My name is Lynsey and I live in Ontario. I was diagnosed with brain cancer at the age of 23, a couple months out of university. More/Less


Lisa Machado - Toronto, Ontario

My name is Lisa Machado. I have an uncommon form of leukemia. The medication that I need to keep me in remission costs almost $4500 per month. More/Less

Laurelea Conrad and Stephen Ferguson - Toronto, Ontario

My name is Laurelea. My husband Stephen is a kidney cancer patient. More/Less

Deb Maskens - Guelph, Ontario

My name is Deb. I live in Guelph, Ontario. My cancer medications were covered 100% by my private insurance, but many patients do not have the luxury of 100% drug coverage through their employer. More/Less




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